Everything you need to know about Help a Sickler, sickle cell disease, and how you can get involved.
About Sickle Cell
Sickle cell disease (SCD) is a group of inherited blood disorders where red blood cells become rigid and sickle-shaped, blocking blood flow and causing pain, organ damage, and complications. In Uganda, it is one of the most common genetic conditions.
Currently, the only cure is a bone marrow transplant, which is not widely accessible in Uganda. However, with proper management — medication, regular check-ups, and a healthy lifestyle — patients can live full, active lives.
Sickle cell disease is passed from parents to children. If both parents carry the sickle cell trait, each child has a 25% chance of having the disease. Genetic counselling and early screening are important tools.
About Our NGO
Help a Sickler was founded by Nakawungu Shakira Norah, who has personal family experience of sickle cell disease. The organisation grew from her desire to extend that empathy to the wider community of sicklers across Uganda.
Yes. Help a Sickler is a registered Non-Governmental Organisation in Uganda, fully compliant with Uganda NGO regulations.
We maintain full financial transparency. 100% of donations go directly to programme delivery — medication support, screening events, family care, and awareness campaigns.
Donations & Giving
We accept Mobile Money (MTN, Airtel), bank transfers, PayPal, and major credit/debit cards through our secure payment gateway.
Absolutely. We receive donations and support from well-wishers worldwide. Our international payment options include PayPal and bank transfer.
This depends on your country's tax laws. In Uganda, donations to registered NGOs may be deductible. Please consult your tax advisor for international donations.
Register a Patient
A patient can register themselves, or a family member, caregiver, or community health worker can register on their behalf.
Yes. Registering a sickle cell patient with Help a Sickler is completely free of charge.
Our team reviews the registration within 5 business days and contacts the caregiver to discuss available support, including screening, medication assistance, and community programmes.
Volunteering
No. We welcome well-wishers with all kinds of skills — from medical professionals to digital creators, community organisers, and administrative supporters.
Yes. Remote well-wishing is available — you can support our digital outreach, fundraising, content creation, or awareness campaigns from anywhere in the world.
Our team is happy to help.